Kool Kampaign Donation

My adorable niece has a rare genetic deletion syndrome, KdVS. If you’re considering where to donate money, I suggest the KdVS Foundation during their Kool Kampaign. First identified in 2006, Koolen-de Vries Syndrome is a genetic syndrome that affects approximately 1 in 30,000 individuals across the globe. With only 19 years of diagnoses and research there is much more work to be done to better support the current Kool individuals as well as those who will be diagnosed in the future. The funds gathered today will impact the Kool community now while also providing a deeper pool of knowledge, awareness and treatments for generations to come.